Deb Jenssen never wanted her children to suffer from the disease that killed her brother at 28. The illness, Duchenne muscular dystrophy, initially manifests in childhood as trouble with strength and ...
The Delhi High Court has directed the central government to establish a national fund for rare diseases, ensuring effective treatment and monitoring for patients suffering from conditions like ...
The play is known as the Jackson Special. Kelly Maynard, Jackson’s mom, said he was diagnosed with Duchenne’s Muscular Dystrophy when he was five years old, which has confined him to a wheelchair. The ...
I’d hoped we had time because he’s the youngest and still walking. We’d tried so hard to buy him that time, to slow down the disease progression so that he’d have skills to save, like upper body ...