Every year, researchers and clinicians gather to share the latest information on cystic fibrosis research and care at the North American Cystic Fibrosis Conference (NACFC). This year’s conference was ...
Balancing college and working full-time while managing my cystic fibrosis can be challenging. However, I have tips and insights that have helped me juggle my academic and professional responsibilities ...
Reporting misconduct helps to promote and maintain an inclusive, respectful, and safe environment. The Foundation has outlined the process for reporting and investigating violations of its policies or ...
The Foundation prohibits discriminatory or harassing behavior or speech directed toward individuals because of protected characteristics. The Foundation also prohibits bullying, which includes ...
New clinical guidance was created to help cystic fibrosis care centers care for people with CF as they face a widening range of health needs. The guidance covers how and when routine CF care is ...
In response to rising drug costs, some insurance plans are using strategies to contain costs that shift financial and administrative burdens to enrollees. These strategies, known as copay accumulator ...
The Cystic Fibrosis Foundation assembled a panel to summarize available evidence, synthesize expert opinion, and provide clinical guidance for the composition of the care team at an accredited CF ...
The Cystic Fibrosis Foundation organized a multidisciplinary committee to reevaluate key aspects of the current care model and considered potential modifications based on a widening range of health ...
With advances in cystic fibrosis care and the changing needs of the CF clinical research community, the Cystic Fibrosis Foundation intends to support National Resource Centers that will address and ...
Through grants, advocacy, and the development of a consensus guideline, the Cystic Fibrosis Foundation continues to advance its Newborn Screening Initiative, pushing for better newborn screening ...
When our son Javier was diagnosed with cystic fibrosis, we felt overwhelmed and isolated — especially as one of the only Hispanic families in our area. Through learning, advocacy, and active ...