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hemophilianewstoday
10 小时
The spectrums of color and pain for a young man with hemophilia
MacDonald talks with her 18-year-old son, Caeleb, about how chronic pain affects his life and perception of color.
hemophilianewstoday
1 天
Hemophilia gene therapy Beqvez reduces bleeds in Phase 3 trial
Beqvez (fidanacogene elaparvovec) led to about three times fewer bleeding episodes than preventive treatment with regular ...
hemophilianewstoday
2 天
Rejection is a risk worth taking, even in the context of hemophilia
Some risks are worth taking, even in a life with hemophilia, columnist Alliah Czarielle has found. In fact, they can be good for us.
hemophilianewstoday
5 天
Immunotherapy helps suppress inhibitors in acquired hemophilia A
Data showed 85% of people diagnosed with acquired hemophilia A had a positive response to immunotherapy combined with ...
hemophilianewstoday
5 天
How hurricanes and hemophilia teach us the power of community
We must weather the biggest of storms together and harness the power of community when life is hard, columnist Jennifer Lynne writes.
hemophilianewstoday
6 天
My 3 takeaways from the bleeding disorders annual conference
Columnist Joe MacDonald, after attending the recent annual conference of the National Bleeding Disorders Foundation, noted three takeaways.
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